Wednesday, April 22, 2009

Jedidiah's update

We have been keeping busy here. I finally feel that we are getting into a "groove" in the right direction :-) It has only taken me nine months since the baby was born...but we are finally being more productive. Which makes things run so much more smoothly and lets us venture out more. We had the privilege of having lunch with Daddy today. It was "Take Your Daughters to Work Day" today. I'm not exactly sure how much work one would get done with four inquisitive girls following you around all day. So instead we just met up with Jeremiah for lunch and he showed us around. We got to meet some of his team mates, manager and other coworkers (hello there!). It was great to put faces to names. The girls really enjoyed themselves. I think it helps them when they get to see where Jeremiah works. He doesn't just vanish off the face of the earth only to reappear magically around 6pm each night :-) Of course one of the highlights of the afternoon were the vending machines. Yes, you read that right. We don't frequent too many vending machines. I am sure it has only been a few times in the older girls lives. So I brought along some change and they took some time (a lot of time) figuring out just what they wanted. And by golly, have you seen the prices of the items in vending machines? We might have to take out a loan if we decide to do that again :-)



On the way home from lunch we decided to stop by the park. It was a beautiful day and hard to say no! And what a blessing it was as we ran into some people from church. Then as we were about to leave we saw someone from our last church. After that we went home to clean up, relax and then make dinner. It is nice that clean up only takes ten minutes and not hours. Later tonight I am hoping to finish Flannery's skirt. The girls are in need of summer clothing and I had some fabric I bought a few months ago, and some fabric I was blessed with from a friend. I am making a very simple tiered skirt. I also plan on getting a pattern for a split skirt. They are like culottes except that they resemble a skirt more than longer shorts. I am hoping that our very active 7 year old will find them more comfortable.



Now onto Jedidiah's update. I wish I could say I having a glowing report. However, Jed took a turn in the opposite direction a little while back and he is recovering from it. Here is what happened:

Almost two months ago Jedidiah started to throw up. I didn't think too much of it as his sisters had a sore throat accompanied by a really yucky tummy. I figured he had the same thing. However after a few days of him still throwing up once a day, he went to twice a day, then three times a day. During that week he also reverted back to grinding his teeth, digging at his throat and pinching his cheek. It was as if all the improvements we had seen since on the homeopathic remedies just went "poof". I called his homeopathic doctor. He figured that something had antidoted the remedies (something made them ineffective). I thought and thought about what that could be (I have a list of things that antidote remedies and none were something that we had been around or used). They asked me where I kept his remedies, and I told them I kept them out in the open on the piano. They said they could send me a tin box to keep them in, which would help to protect them against wireless "things". So we did that and he very slowly started to improve. I figured it was a coincidence. Well a few weeks later Jeremiah was working from home and he needed to be in a quiet place for a meeting that he was going to have. He told me that he needed to turn the router over to being wireless for two hours. (For those of you who do not know, we have gone to land line computers and phone, as per the recommendation of the homeopathic doctor.) He went on to the router to switch over the setting to wireless.....and.....it was ALREADY switched over!! He realized that when he had redone our computer (I'm sure there is some fancy dancy name for it, I just can't think of it right now) the router must have reset itself to its previous settings. I asked him how long it had been since he had done that....."About a month ago," he said. That was the same time Jedidiah went downhill. Well we turned off the wireless and would you know that within three days he was back to his "new" self?!?! We certainly can not ignore the experience we had. We had both thought that going wireless was a bit extreme, but were willing to do it as we are pretty much willing to do whatever it takes to get Jedidiah healthy. There is no denying that it has some effect on him/or the remedies for that matter. Why, how....? We don't know the science behind it, but we are certainly not willing for that to happen again. By the way once Jedidiah's body is healed then those things will not affect him in that way. That is not saying it will have NO effect on him at all, just that he won't go back to his former self. But obviously wireless technologies has a bad side to it, one that we may all be paying a price for, even if we don't see the results......at least we don't see them yet. So all of that means that Jed lost ground. He didn't loose weight, but he didn't gain much for that month...a few ounces. We have switched him over to some new remedies this month and so far he is doing great, eating pretty well (for Jedidiah). I will say that before we started him on the new remedies he had been having some serious sensory issues. Some of his most beloved things were scaring him. The noise of airplanes, helicopters and cars/trucks. Even tractors!!! That is saying a lot, because he LOVES tractors! But they literally ran him back inside the house, screaming all the way. I really am not sure if it is a coincidence, but since we switched his remedies he has improved in that area at least 90 percent! We have been able to be outside without him screaming to go in. He will get a concerned look on his face if he hears something loud, but it doesn't send him running. I am hoping that it will be resolved all the way for his sake.



This past week when Jedidiah had his speech therapy, Amy, his services coordinator, was out to visit to see how things were going. Both his speech therapist and myself told her that we were not seeing results. Jedidiah still says the same sounds for everything. And although we have made some progress in communicating, it hasn't been through speech. Jedidiah has learned to come up to me and pull on my skirt and show me what he wants or needs help with. This works well most of the time. But not for everything. For example he was pointing to his tummy and making this noise. I couldn't tell if he was hungry, hurting, felt like he was going to throw up or what! He has woken up in the middle of the night crying and crying and we have no idea why as he can't tell us. I plan on working more with sign language, I just need to learn some more signs to help him express some of these possible situations. Amy thought we could use the help of an augmentative communications specialist. We will be meeting with someone next week to determine if she has something that can help Jedidiah communicate more effectively. She said there is a possibility that he has this condition, the name escapes me right now. When I told her about him freaking out over noises he has heard all his life, that seemed to tip her off to this possibility. Basically the condition is that Jedidiah can understand us and he knows what he wants to say, but there is a disconnect in the brain, and he can not get the words out of his mouth. I'm not sure what we do about it, but she assured me that it is something that can be worked on, but it would change the course of his therapy. Jedidiah will be 3 in two months and he has three sounds that he makes for everything, "bah, dah, pah". That's it.



Well this is getting to be novel length. I had taken a break to cook dinner and even worked on Flannery's skirt. I probably would be done with her skirt by now, but I messed up on a part and had to rework it, and then I lost steam. Oh well, I'll make a go at it tomorrow.

6 comments:

Henley said...

Keri, thanks for posting the update on Jed. I always look for updates about him and am so glad he is back to feeling/acting better! He is just SUCH a cutie pie!! Jonah is adorable too. Tell the girls hi and to post on their blog soon!

Anonymous said...

Keri, We were so glad to have an update on Jed! I have a website that may be helpful for signing www.lifeprint.com/asl101 It is free, it is great, my three older boys are taking American Sign Language from this website as opposed to a foreign language to satisfy their highschool requirement. Also my younger kids pick up alot as well!

The Southern Peach-Girls said...

Henley,
It is good to hear from you :-) I am hoping to be a bit more regular, but things around here can get a wee bit crazy, with little to no warning :-)

Anon,
Thank you for that site!!!! I will definitely be looking into it! I would love for all my kids to learn. So far we have been using the Signing Time video series. For Jed's birthday (July 1st) we want to get more of them. He LOVES Alex and Leah. He will be so excited.

Kerri

Anonymous said...

i used sign language with noah -- he loves it! have you seen the baby signing time vidoes? would you be interested in them? we can burn a bunch for you and send them off...if jed likes videos it might be a great way to learn the signs (you too!). let me know if you'd like them :) xoxo
--isabelle

Nancy M. said...

How nice for your girls to be able to visit their dad's work!

I am really surprised to hear that the router did that much. That is so scary! I am glad you figured it out and that Jed is doing better!

Angie said...

Expressive aphasia?

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