Monday, October 26, 2009
Sunday, October 25, 2009
So about that glitch.....Saturday morning I am getting everyone ready for soccer. The last thing for me to do is get Jed's feeding pump ready to go. So I got the pump in the backpack, filled the bag with formula and I turned it on so that I could prime it, which is the last step. But what's this? Where is the bouncing kangaroo, the flash of green, yellow and red lights, the triple beep? Surely I must not have hit the power button hard enough, so I re-hit it....nope, no beeps, no kangaroo, nothing. I was pretty positive that when I went to get his pump that I had to unplug it from being recharged. But to make sure I went and got the plug to plug in the unit to see if maybe the battery hadn't recharged. I go to plug the adapter into the back of the unit, but something funny was going on with the plug, it was all wobbly. I take a look to find that there is a piece missing from the unit and now the plug adapter won't sit firm to stay in contact with the unit to recharge! So later on Jeremiah rigs something up to get it to stay in there, but alas we now get the unit to turn on but with an error that won't let us proceed and it makes the machine power down! In case that was all gibberish to you, as I know I don't always make sense, in plain English: Jed's feeding pump is busted!!! Let me just say that this is NOT good!! With a capital N, capital O and a capital T. NOT good. We are still able to give him his feedings by doing bolus feeds. The good news is that as long as we take our time, he is keeping them down (a problem in the past). The bad news is that it takes me being *right* there to manage it.
Now the game begins to see how this will get resolved. His home health service says we have to contact the manufacturer to see about the machine's warranty. I can only imagine the possible go around we may have. So I am earnestly praying that this is resolved quickly, in a God way. Because I truly believe it is going to have to be a 'God thing' for this to get taken care of in a quick fashion. As it is it is past midnight and I am up because I have to give Jed his feeding bit by bit so as not to overwhelm his stomach.
We are also in prayer concerning his speech therapy. I have sent in the paper work some two weeks ago and we are still awaiting a call or letter that will tell us the next step. We really need to get Jed set up with therapy soon.
A praise though, we have found multiple sources for goats milk for the winter!! Our friend who supplies us with goat's milk for Jed has her goats dried up. Last year we had to buy pasteurized goats milk from the store, and even had to buy powdered milk (which did a number on his pump!). I was praying that we wouldn't have the same problems this year. And praise the Lord He has provided a couple of families willing to give us their goats milk, as they have not dried up their goats. Yeah!!!
So lots going on. I can't wait to show you the cute pictures we got of our farm outing. We were also able to obtain another memory card so that I can make those videos. It wasn't our camera that was messed up, just the memory card. Which is a relief. Memory cards are MUCH cheaper than cameras! :-) We will be borrowing this card until we can get our own. I am so thankful! Now I can show you all how Jed talks.
I need to finish up here and give Jed the last bit of his feeding so I can go to bed myself. I do have another interesting story to tell you all, but I will save it for later as I am too tired to type it out. It has to do with Isabella and a tummy bug. Very interesting indeed!
Tuesday, October 20, 2009
We had a pleasant day today. We got outside for some fresh air and a lot of dirt....a lot of dirt. So two muddy boys and two muddy girls got baths when we came in. I got a lot of my schedule stuff done, but still not finished. It was nice that when it was clean up time a few of the girls were pleasantly surprised when there wasn't much to clean! Yes, that is how it goes if you actually put things away right after you use them, and you keep little boys out of things :-)
Off to do more laminating :-)
Monday, October 19, 2009
Flannery's hair awaiting the scissors! Her hair has been difficult as it is wavy. Even her bangs have some wave in them, which always gives the appearance of it being unkept. The last time I cut her hair I put layers into it which really helped. So I was a bit nervous that she wanted a bob like Moira.
A side view of her lenghth.
Now the finished product :-) Her hair really was even when wet, but here it had some time to dry and it looks uneven....again the wave action. But she is very happy with it, and I think it turned out great.
I parted her hair to the side, which I think helps. Her hair is still only half dry at this point. It looks great this morning all dried.
Here is Moira's new look. I don't have a before shot, but I am sure there are plenty of pics in previous posts to know that her hair was LONG.
A side view. I think I snapped it at an odd moment...oops.
And the back. Her hair was all the way down to her lower back. I think I cut at least 8 or so inches off!
Wednesday, October 14, 2009
"It" happened, just like I thought it would. That "it" being sickness! So I got the house all done (with the exception of a box of game pieces that need to find their rightful home). I happened to get it all finished about 5 minutes before we were leaving for our camping trip. When we came home I had the girls help me bring EVERYTHING back inside from the van. I was pretty sure we brought everything but the kitchen sink. I was wrong, we left the kitchen sink and the wasp spray at home! Our camping trip will need a post of it's own. Anyways, this was a Sunday and the girls reminded me (in hopes of getting out of this huge task) that it was the Sabbath and how we shouldn't be working on it! Well, yes, that would be the general rule, however you can't leave wet things in a van, or food in there as well. And by golly I knew they would head out to the van to "get one thing" and I would find myself knee deep in "one things" before the day was out. So we got it all out of the van, into the house, and I had them immediately put it all away. So far so good I thought! Monday came and Jeremiah was home from work, his last day of vacation. I tried to wrap my brain around making up a plan to keep the house running smoothly, we went shopping, did school and the like. There was no hint of anyone being sick. We went to bed, only for me to be awakened at 3 AM to a toddler who was burning up! Now usually when my kids are sick their fevers wane come morning, and then build back up by evening. Not to mention that besides some fussiness, and some extra sleeping, they pretty much go about life as normal. Well this little guy was sick! His fever ran strong, night and day, even with meds. He was either nursing, trying to sleep, or crying! He had maybe 30 minutes of "play time" all day for the first two days. His play time consisted of him getting down grabbing an object, then crawling back into my arms to continue his fussing or nursing. But the thing that really settled it in my mind that he was really sick....he wouldn't eat solid foods! This is Jonah we are talking about! This is my meat and potatoes kid, this is my 'everything in life is good now that I have some food' type of kid. He didn't want to eat. Now that's bad. So I was able to get in to see our alternative practitioner. Her testing revealed that he has the swine flu *gasp*. I'm joking about the gasp part :-) She gave me a remedy for all of us should we fall ill this winter. I was to give him a dose every hour. Well by that night my boy was eating, and running and laughing! Don't get me wrong, he's still sick, but much, much improved! He woke up with a fever of maybe 99. His eyes were red, but now only one is pink. The only thing is he's still really fussy. But he is down and playing with toys and walking around. So I will continue giving him the remedy every hour today and hopefully by tomorrow he'll be more like himself.
Because he's still fussy I will need to get off of here. Here are my 'after' and 'before' pictures. Nothing drastic, but it's a nice change:
This is a self portrait as everyone bigger person was out of the house at the moment :-)
And here is my explanation of some of the pictures you will be seeing, it is in order, but not every picture is taken into account. Hopefully it is evident when you see the montage.
*decluttering the computer room-before-well actually I should say "during"
*our first egg!! (from one of our own chickens)
*an egg comparison-on the left a store bought egg, on the right, ours. Notice the color difference. Our egg yolks are actually orange. The darker color means more nutrients. So our we are feeding are chickens right :-)
*soccer girls-each girl in the soccer garb on the field
*tent practice-the girls slept out in a tent on our porch
*outside play time--our own petting zoo, tent building
*our museum adventure-notice Flannery jumping from a rock!
*our camping trip-unfortunately those are the only pictures I got! Ugh.
*last picture is for comic relief-make sure to look in the blue bin!
Tuesday, October 13, 2009
Anyways, I have been doing a lot of research on apraxia lately. Jedidiah has not been doing well in speech. He had actually "lost" words that he used to say. From my reading I found that is common with apraxia. I've been trying to make a lot of books/games for Jed to encourage him to speak. I went on YouTube to look up apraxia to see how other kids talk. We haven't met anyone in person with it so it is hard to gauge how good/bad Jed has apraxia. His speech therapist told us he was bad. After all on the testing she did all of Jed's scores were at the 2 percentile or less! But still, those were just numbers and without some idea of what that meant in the real world it was hard to process. Well we came away from those videos a bit dismayed. Jed really is bad! So I started reading as much as I could to see what I can be doing here at home (besides what I was already doing). I have read that there has been some good success with fish oil supplements with children who have apraxia. We had been giving him some in the past and we didn't see any changes. However on one site that I was reading they said that some kids need only 1ml per day but other kids may need 10mls per day! So I increased the amount we had been giving him. I'm not sure if its coincidence, or the fish oils, but last night Jed had a speech explosion! I need to get a video of him talking so that we will have a reference to compare to over the coming months. But last night he said three new 'words'. He said, "yes", "down" and "moo". Now each of them was not said properly, but they were close. Besides the word "up" Jed doesn't put any consonant endings on his words. But he said the /s/ sound in "yes" last night! For "moo" it sounded more like maaaaaaa. But he has only ever said "mmmmmmm" for the sound of a cow, so this is an improvement. And for the word "down" he said it more like "don". But Jed hasn't even been trying to say words for the past couple of months so this was very exciting!
Hopefully I'll get him to talk on video today. I am hoping to redo the house tour as well. Each video takes forever and a day to upload to YouTube though, so it may be a day or two before I get them on my blog. I am also hoping to update my tags to make things easier to keep track of. I want to start a tag for apraxia, and a tag for homeschooling resources. I've come across some neat sites that I have been getting a lot of ideas from that I want to pass along to everyone. Now that I have my house done I need to work on my next task, which is getting us organized with routines/schedules. It would be so nice if, when you saw a system you liked, you could just implement it and it would work! Ha! But as you will see in my house tour I point out a long the way what is working for us, and what I've learned after trying to make it work, what doesn't work for us and how I need (or think I need) to change it. It is definitely a process in work.
Until the next time, have a wonderful day.