...but no pictures to share of it, at the moment. I am waiting for them to download and will not be awake before they do. So Friday we had a bonfire. Those are always fun and always accompanied by s'mores. We had a friend staying the weekend, so he got to share in the fun. Saturday was soccer. But it was also our glitch day, which I'll get to in a moment. Saturday evening we just vegged and tried to prepare for Sunday. Sunday after church we had a birthday party to go to. It was held at a farm nearby that has a lot of other attractions. It was so much fun. We got to go on a train ride, a hay ride, slide down an 80 foot slide, go in a hay jump and a corn play room. The kids had a blast. They also got to take home a pumpkin. We were surprised to have to shoo off yellow jackets as it was quite chilly. Jeremiah single handedly killed at least 8 of them, at last count! Poor Jed was in one of his 'sensitive states' and was really freaking out about the bees. It is possible with some other things that have been going on with Jed that his remedies have been antidoted. Can anyone say 'roller coaster ride'? Jed over all has been doing well, but we've hit a wall in his sensory issues and that can be stressful on everyone.
So about that glitch.....Saturday morning I am getting everyone ready for soccer. The last thing for me to do is get Jed's feeding pump ready to go. So I got the pump in the backpack, filled the bag with formula and I turned it on so that I could prime it, which is the last step. But what's this? Where is the bouncing kangaroo, the flash of green, yellow and red lights, the triple beep? Surely I must not have hit the power button hard enough, so I re-hit it....nope, no beeps, no kangaroo, nothing. I was pretty positive that when I went to get his pump that I had to unplug it from being recharged. But to make sure I went and got the plug to plug in the unit to see if maybe the battery hadn't recharged. I go to plug the adapter into the back of the unit, but something funny was going on with the plug, it was all wobbly. I take a look to find that there is a piece missing from the unit and now the plug adapter won't sit firm to stay in contact with the unit to recharge! So later on Jeremiah rigs something up to get it to stay in there, but alas we now get the unit to turn on but with an error that won't let us proceed and it makes the machine power down! In case that was all gibberish to you, as I know I don't always make sense, in plain English: Jed's feeding pump is busted!!! Let me just say that this is NOT good!! With a capital N, capital O and a capital T. NOT good. We are still able to give him his feedings by doing bolus feeds. The good news is that as long as we take our time, he is keeping them down (a problem in the past). The bad news is that it takes me being *right* there to manage it.
Now the game begins to see how this will get resolved. His home health service says we have to contact the manufacturer to see about the machine's warranty. I can only imagine the possible go around we may have. So I am earnestly praying that this is resolved quickly, in a God way. Because I truly believe it is going to have to be a 'God thing' for this to get taken care of in a quick fashion. As it is it is past midnight and I am up because I have to give Jed his feeding bit by bit so as not to overwhelm his stomach.
We are also in prayer concerning his speech therapy. I have sent in the paper work some two weeks ago and we are still awaiting a call or letter that will tell us the next step. We really need to get Jed set up with therapy soon.
A praise though, we have found multiple sources for goats milk for the winter!! Our friend who supplies us with goat's milk for Jed has her goats dried up. Last year we had to buy pasteurized goats milk from the store, and even had to buy powdered milk (which did a number on his pump!). I was praying that we wouldn't have the same problems this year. And praise the Lord He has provided a couple of families willing to give us their goats milk, as they have not dried up their goats. Yeah!!!
So lots going on. I can't wait to show you the cute pictures we got of our farm outing. We were also able to obtain another memory card so that I can make those videos. It wasn't our camera that was messed up, just the memory card. Which is a relief. Memory cards are MUCH cheaper than cameras! :-) We will be borrowing this card until we can get our own. I am so thankful! Now I can show you all how Jed talks.
I need to finish up here and give Jed the last bit of his feeding so I can go to bed myself. I do have another interesting story to tell you all, but I will save it for later as I am too tired to type it out. It has to do with Isabella and a tummy bug. Very interesting indeed!
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