Ok, it is late and I have written a few emails about this already and am too tired to write it all out again. So I copied something i wrote earlier and put it below. It is the bare minimals on the situation. I will try to update tomorrow if I can.
This has been a long road, and it seems it is going to get bumpy here for a bit. I have had to write a few emails about this and am tired right now, so I may not get all the info here, but enough for you to know what is going on and what to pray for. As many of you know Jedidiah had started out small (he is 7 months now!) and was growing along his own little growth curve about the 1 %tile. Then he started falling off the curve. I fixed a latch on problem and he gained weight, but no height. So the doctor said to come back in a month for a weight check. Well that was this past thursday. He didn't gain any weight, nor had he grown taller! So we did some blood tests and urine/bm tests. The good news is that it is not a milk supply issue--otherwise we would have seen evidence of that in some of the tests. The bad news is we still don't know what is going on. He had three readings that were off on his blood test. One the doctor feels is just off because a baby's reading would be higher and they probably have the norms set for an older child/person. Then he had one of his liver readings off a bit (not a whole lot) that could be totally fine, maybe an indication of an allergy even, so nothing that points to a specific problem. Then he had one of his thyroid readings off. *they only got two of the four thyroid readings done as they couldnt' get enough blood from him. It indicates a low thyroid. Our doctor is stumped and has us seeing someone else tomorrow. My sister (who is a nurse) thinks that it may be his growth hormones. If it were a thyroid problem she thinks that all his thyroid readings would be off. But growth hormones are from the pituitary glands and they could be effecting his thyroid, which is why only one of them is off. She has done a bunch of reading up on this for me, and the fact that his head keeps growing (it's the normal 50% for a 7 month old) but his weight and height are not are a strong implication of a problem with growth hormones. But obviously we are probably going to have to go through more testing. it has been stressful, so please pray for our peace, and wisdom for the doctors. Please pray for Jedidiah's health (to not get sick as he is so small). And pray for just the logistics of arranging child care for the other kiddos. We have a great church who are really helping us, but a lot of this will be last minute needs. We found out the results today and had to get an appointment with another doctor and then needed to call around to get a babysitter on short notice....
No comments:
Post a Comment